Tuesday, September 11, 2012

The Floor

Leo has made the big move to "The Floor" as they call it. He is now on the third floor in the Childrens Surgical Unit and has left the CICU (Cardiac Intensive Care Unit) meaning he is not a critical heart patient anymore. This is great news and also an adjustment to go from a nurse with him 24 hours a day to a regular room with a nurse who has other patients.

He is not on any oxygen right now and hopefully won't have to come home with any. However he did not pass his swallow study meaning he is not ready to take food by mouth and will keep his feeding tube in for now.

Big news is we should be coming home at the end of the week! This is much sooner than we expected. If he was taking food by mouth we would be here a little longer while he figured that out.  But overall he is doing awesome and definitely fits into the best case scenario for his heart defect and what his poor little body has been through.

I can see home in our future.  I am both thrilled and terrified.


13 comments:

  1. End of the week? Hooray! Leo continues to amaze me. What a champion. I can't wait to see you guys. Oh, and well said: "thrilled and terrified"...I can only imagine. You will do awesome, and I bet being a family again will probably tip the scales toward"thrilled." Love you.

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  2. Yay!! You will do great! Good luck at home! I'm loving his red hair :)

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  3. Wow, he's doing so great. What a blessing. I would be terrified too. You are going to do great though. Who loves him more than his sweet family.

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  4. Hooray!!!! Leo, you are one amazing little man. I'm so excited for your entire family. This is the best news I have heard all week!

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  5. Wonderful news!! Way to go Leo!! He is amazing and so strong. You are amazing and will continue to be blessed.

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  6. P.S. I love his beautiful red hair!!! So precious.

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  7. So excited for you to be back home, and know how excited your little girls are to have you and Leo back! Can't wait to hug you and snuggle little Leo. His red hair looks like a glowing halo! He's special, you can tell.

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  8. He's a cutie! And he's been born into a wonderful family. Thinking of you and wishing you all the very best.

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  9. I'm so excited he is doing good! he is just adorable.

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  10. Leo is so adorable. Love that red hair! We have been thinking about you guys and praying for you a lot. I lost this link for awhile, and finally was able to look it up and get reconnected. I'm glad to know things are going so well. We will keep sending prayers your way!

    How are you doing, Amanda? And Scott, and the kids? How are you all holding up? I tried to visualize you, just after delivery, sitting in the waiting room while he was in surgery. How uncomfortable that must have been for you, physically and emotionally! I hope you are feeling as well as can be expected. Lots of love for you all!

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  11. From the sounds of it Leo is already home. That is so great! Much sooner that you expected, right? I'm so glad that he is a "best case scenario". What a little sweetheart. So completely adorable.

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  12. Amanda and Scott, I am so far away but I am praying for you and know they are endless. Leo is absolutely adorable as all of your children are. You have such a good family - so happy they are there with you.

    God is so good and he must have something wonderful in store for this little beautiful baby.

    Blessings to all - Tacie - prayers from Bangkok

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